First Swim This Summer

Two weekends ago, we were invited to my brother-in-law's birthday at their home. All the kids were excited to go swimming because the past few weeks since mid-February had been very, very hot.

While his brothers immediately plunged in the pool, we placed James' stroller near it and let him watch first while we finish his tube-feeding session. (His feeding bag and pump were strapped inside the backpack behind the stroller).

See how excited our little boy is!

James was already perspiring about 10 minutes later so hubby dressed him in trunks and handed him to me in the water. As always, James was so happy to go swimming. There, I can just support his head while he lay face up and kick his feet and legs with delight.

James with Mom and brother Josh

Overall, it was such a nice afternoon :)

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Playing with Flash Cards

James loves words and letters. He enjoys being read to. He likes it when he hears people singing the alphabet or speaking in rhymes. He particularly gets excited when we show him big, bold letters on flash cards. The other night, Daddy and James played with letters. Our little boy seemed to have enjoyed seeing his name spelled out on the mat.

James and his Bard Button

After more than 21/2 years, James underwent another procedure to replace his G-tube with a Bard button . No more long tube! (Big sigh of relief). Contents of a Bard kit Prepped for the procedure

I Am The Child

I am the child who cannot talk. You often pity me, I see it in your eyes. You wonder how much I am aware of — I see that as well. I am aware of much — whether you are happy or sad or fearful, patient or impatient, full of love and desire, or if you are just doing your duty by me. I marvel at your frustration, knowing mine to be far greater, for I cannot express myself or my needs as you do. You cannot conceive my isolation, so complete it is at times. I do not gift you with clever conversation, cute remarks to be laughed over and repeated. I do not give you answers to your everyday questions, responses over my well-being, sharing my needs, or comments about the world about me. I do not give you rewards as defined by the world’s standards — great strides in development that you can credit yourself; I do not give you understanding as you know it.

Gideon James' Journey

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