Gideon James' Journey

A lot of people, who find out that my son is 100% tube-fed , usually ask me to describe how we feed James . So as not to stretch your imagination too much, here's the step-by-step procedure told in photos :) 1. Prep the G-tube button

Nope, James is not having his hair permed :p He had a seizure episode last August 4 when our pedia-neuro was unfortunately out of the country at the time. Fortunately, we were referred by my sister to my nephew's neuro who advised us to have James undergo an Electro Encephalogram (EEG) to check brain activity. Since it was about 3-4 years since James' last procedure, hubby and I were surprised to see that the graphs are now being done digitally whereas a few years ago, graphs were "written" on pages and pages of large pieces of continuous paper.

After more than 21/2 years, James underwent another procedure to replace his G-tube with a Bard button . No more long tube! (Big sigh of relief).  Contents of a Bard kit  Prepped for the procedure

It took us (mom and dad) a month (and thousands of pesos later) of going to and from the hospital to have James' NGT (nasogastric tube) inserted in the ER before we mustered the courage to attempt learning how to insert the scary 24 inch tube into James' nose straight to his stomach.  Notice Daddy and Mommy 's MacGyverisms : -- clipping the hard round core of a roll of electrical tape to the wall so that the 60cc syringe can be hanged instead of tying up hands that are also pouring the formula during feeding