Gideon James' Journey

A lot of people, who find out that my son is 100% tube-fed , usually ask me to describe how we feed James . So as not to stretch your imagination too much, here's the step-by-step procedure told in photos :) 1. Prep the G-tube button

As many parents who have children with special needs know, it is sometimes very hard to find or buy supplies for our kids that we can afford. As such, if you know of people who are disposing the following items either through donations or discounted prices, do let us know. We would appreciate the help very much.  All photos you can see here are: 1. Formulas for tube-feeding that would greatly help James get the special nutrition he needs 2. Special needs equipment that would make him more comfortable and which would help us take care of him better *items are updated as the need for them arise

After more than 21/2 years, James underwent another procedure to replace his G-tube with a Bard button . No more long tube! (Big sigh of relief).  Contents of a Bard kit  Prepped for the procedure

Finally! After bearing the discomfort of having an NGT for feeding for more than 3 years, James finally got his g-tube on June 26, 2005. The hospital costs and doctors' fees were steep but with the help of family and friends, we were able to pool enough money for James to undergo the surgery. Happy baby who's now NGT-free!

It took us (mom and dad) a month (and thousands of pesos later) of going to and from the hospital to have James' NGT (nasogastric tube) inserted in the ER before we mustered the courage to attempt learning how to insert the scary 24 inch tube into James' nose straight to his stomach.  Notice Daddy and Mommy 's MacGyverisms : -- clipping the hard round core of a roll of electrical tape to the wall so that the 60cc syringe can be hanged instead of tying up hands that are also pouring the formula during feeding