Steps to Tube-Feeding

A lot of people, who find out that my son is 100% tube-fed, usually ask me to describe how we feed James. So as not to stretch your imagination too much, here's the step-by-step procedure told in photos :)

1. Prep the G-tube button

2. Insert one end of the extension tube to the button

3. Make sure the button and extension tube are attached properly to each other

4. Insert the 60cc syringe to the other end of the extension tube

5. Ensure that the syringe and extension tube are connected properly

6. Prepare the crushed Phenobarbital tablet (this is James' anti-seizure medication taken once a day)

7. Pour a little water in the syringe

8. Add the Phenobarb to the water

9. Prep the formula/blenderized food in the feeding bag

10. Join the feeding bag's spout to the end of the feeding tube extension

11. Regulate the milk flow (if using gravity feeding without a pump)

12. Take photo of happy kid being tube-fed :p

Comments

James Undergoing EEG

Nope, James is not having his hair permed :p He had a seizure episode last August 4 when our pedia-neuro was unfortunately out of the country at the time. Fortunately, we were referred by my sister to my nephew's neuro who advised us to have James undergo an Electro Encephalogram (EEG) to check brain activity. Since it was about 3-4 years since James' last procedure, hubby and I were surprised to see that the graphs are now being done digitally whereas a few years ago, graphs were "written" on pages and pages of large pieces of continuous paper.

Swimming!

One of James ' favorite activities is being in the water. Here are some shots taken in my sister's family's pool in Ayala Alabang ...

About This Blog

Hi everyone! This site is created to chronicle the life of Gideon James Floresca , born a preemie on September 18, 1997. He has been diagnosed with global psychomotor delay and has the spastic quadriplegic type of cerebral palsy . Look how small James was when he was born! He has been "eating" via a feeding tube since he was five due to failure to thrive. From an NGT (naso-gastric tube) that we used for more than 3 years, he underwent surgery in 2005 so a gastrostomy tube can be placed directly in his tummy. In March 2008, we were able to afford a Bard button which made feeding him so much easier. He's currently 100% tube-fed with complete food formula. James at 4 months old It is our hope that his story will serve to inspire and encourage even families with "normal" children. Join us in our continuous journey of hope :)

Gideon James' Journey

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