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James Undergoing EEG

Nope, James is not having his hair permed :p He had a seizure episode last August 4 when our pedia-neuro was unfortunately out of the country at the time. Fortunately, we were referred by my sister to my nephew's neuro who advised us to have James undergo an Electro Encephalogram (EEG) to check brain activity.


Since it was about 3-4 years since James' last procedure, hubby and I were surprised to see that the graphs are now being done digitally whereas a few years ago, graphs were "written" on pages and pages of large pieces of continuous paper.


Here, you'll see James during the Awake and Asleep sessions taken at different dates. The Awake pictures were taken on August 11. We had to come back last Aug 21 for a second session because the first results were "unreadable" according to the technician. Tsk, so much for the P300+ fee for the sedation (an injection of Diphenhydramine) that didn't even work! Hubby and I had to sing and count numbers for almost 2 hours just to bore James so he will go to sleep.


The second time, I deliberately did not let him sleep the whole night. He was awake from 10 p.m. until we arrived at the hospital at 2 p.m. the next day. I was so expecting him to fall asleep by then. But, by golly, it took me more than 2 hours of singing lullabies just to get him to sleep! The technician was already telling me they'll be closing at 5 p.m. and if James didn't sleep by 4:15, we'll have to reschedule and come back another day. Thank God my son finally welcomed dreamland by 4:10!


Now, we're hoping to get good results within this week. I really pray we won't be told that James needs another anti-seizure med for maintenance. One is enough (Phenobarbital taken once a day since he was one month old), thank you very much! Please help us pray for good news.


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About This Blog

Hi everyone! This site is created to chronicle the life of Gideon James Floresca , born a preemie on September 18, 1997. He has been diagnosed with global psychomotor delay and has the spastic quadriplegic type of cerebral palsy .  Look how small James was when he was born!  He has been "eating" via a feeding tube since he was five due to failure to thrive. From an NGT (naso-gastric tube) that we used for more than 3 years, he underwent surgery in 2005 so a gastrostomy tube can be placed directly in his tummy. In March 2008, we were able to afford a Bard button which made feeding him so much easier. He's currently 100% tube-fed with complete food formula. James at 4 months old It is our hope that his story will serve to inspire and encourage even families with "normal" children. Join us in our continuous journey of hope :)